|Infusion Day||Jan 28, ’07 11:37 PM
for Mel ‘s friends and Mel ‘s family
Tomorrow is infusion day. I will drive to the VA in Columbia, SC and spend most of the day getting a drug called Rituxan pumped into my arm. I haven’t had an infusion of this medicine since December2005/January2006. If you weren’t part of my blog-audience waaaaaaay back then, you can read about ithere.
I was supposed to get my infusion in July or August of 2006, but I was busy moving across the country then. In true VA fashion, my appointments were mumbled and jumbled, postponed and cancelled, they drug their feet and managed to screw things up more than should be humanly possible. So, that is why the infusion is coming six months after it should have.
I don’t mean to sound ungrateful. I have stated many times before that I am thankful for the care I recieve from them, for there is no way we could afford the co-pays on my meds. I am up to 16 pills a day now (on Saturdays I take 20 pills) and this one mega infusion every 24-48 weeks. My infusion alone costs around $10,000, I don’t really want to know what the co-pay for ALL my drugs would be. Besides the hurry up and wait mentality, there isn’t much to complain about. I got approval for this infusion drug before it was even FDA approved, months before anyone on my support group message boards had even heard of it.
It worked too. Oh I wasn’t running marathons like the people on the arthritis commercials, but I didn’t manage to slide out of bed with minimal cursing for the better part of the year, and I managed to go an record six months without needing assistance to button my jeans or fasten my seatbelt. The last few months have been a steady decline back into pain and swelling. This infusion appointment will hopefully provide a few more months were I can almost kind of pretend I am okay.
So, while I am not looking forward to the long drive to the VA OR the enevitable “lookin’ for your Grandpa sweetie?” comments OR the John Wayne movies I will undoubtably be forced to view tomorrow while I sit in the chemotherapy lab with a bunch of men decades younger than me……. I am looking forward to some sweet relief.
Cross your fingers that I get it.