January 10th, 2006 Jan 10, ’06 9:50 AM
for everyone
Tuesday, January 10, 2006

Yesterday I finally heard back from both my new RA dr and my old RA doctor.  Seems that no one really knew that the transfer of patients was going to happen as quickly as it did.  So, after my old dr.  apologized I felt a little less angry at her, but I still feel really let down.  The new dr was short and to the point on the phone.  He has a private practice in Wichita.  So, the idea is that since he is established locally he will have more time to devote to the patients at the VA.  The old doctor practiced at two different VA and had two private practice offices.  New dr. said that we will carry on with the Rituximab infusion tomorrow as planned, and then I will see him for the first time on Friday the 13th.  When I see him then we will have more time to talk about everything that is going on.  It is a good thing I don’t believe in superstitions, having my first appointment on Friday the 13th.

Tomorrow is a bit of a juggle.  My parents are leaving in the early morning hours for a planned trip to WI and MN to see my sisters.  So, my friend Kasee is taking me to Wichita and dropping me off.  Then Kasee will come out to my house to wait for Carsten to get off of the bus,  and take Carsten back to her house where she will watch her for us until we  get home.  Cody gets home from school at about 3:30 and the neighbors are helping out with him.  BB is going to take work off early afternoon and drive to Wichita to pick me up, then we will pick the kids up on our way back home.

It has been a long day, and tomorrow promises to be even longer.  I am fighting the complusion to eat everything in sight tonight, because I know I will probably have metal mouth tomorrow.

Keep your fingers crossed that nothing goes wrong with me getting the infusion, this infection still has me feeling scattered and a little shaky.  I feel reassured by both my old and new doctor that the benefits outweigh the risks, but still feeling a lot of apprehension……

Good night all!


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